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1.
Mundo saúde (Impr.) ; 48: e15322023, 2024.
Article in English, Portuguese | LILACS-Express | LILACS | ID: biblio-1526683

ABSTRACT

O envelhecimento populacional e o aumento das doenças crônicas não transmissíveis, dentre elas o câncer, têm exigido a incorporação dos Cuidados Paliativos (CP) às redes assistenciais em saúde. Assim, o objetivo deste estudo foi descrever o perfil dos pacientes em cuidados paliativos atendidos pela fisioterapia na assistência domiciliar de um hospital de referência em oncologia. Trata-se de um estudo transversal, quantitativo, retrospectivo e descritivo, da análise de 76 prontuários de pacientes assistidos pela fisioterapia na assistência domiciliar do hospital entre agosto de 2018 a agosto de 2019. A maioria dos pacientes era do sexo feminino (n=51, 67,11%), da raça/cor negra (n=46, 60,52%), na faixa etária de 60 a 80 anos (n=36, 47,37%). O câncer de mama (n= 22, 28,95%), pulmão (n=11, 14,47%) e próstata (n=8, 10,53%) foram os mais frequentes e a maioria apresentava progressão da doença. Por fim, o principal motivo para o acompanhamento pela fisioterapia estava relacionado a funcionalidade e mobilidade. A caracterização dos pacientes que necessitam de atendimento fisioterapêutico na assistência domiciliar de um hospital de referência em oncologia faz-se necessário para melhor planejamento do cuidado pois tais informações podem direcionar possibilidades terapêuticas, permitindo maior efetividade no tratamento.


Population aging and the increase in chronic non-communicable diseases, including cancer, have required the incorporation of Palliative Care (PC) into health care networks. Thus, the objective of this study was to describe the profile of patients in palliative care treated by physiotherapy in home care at an oncology reference hospital. This is a cross-sectional, quantitative, retrospective and descriptive study, analyzing 76 medical records of patients assisted by physiotherapy in the hospital's home care between August 2018 and August 2019. The majority of patients were female (n=51, 67.11%), of black race/color (n=46, 60.52%), aged between 60 and 80 years (n=36, 47, 37%). Breast (n=22, 28.95%), lung (n=11, 14.47%) and prostate (n=8, 10.53%) cancers were the most common and the majority showed disease progression. Finally, the main reason for physiotherapy monitoring was related to functionality and mobility. The characterization of patients who require physiotherapeutic care in home care at an oncology reference hospital is necessary for better care planning as such information can direct therapeutic possibilities, allowing greater effectiveness in treatment.

2.
Rev. enferm. UERJ ; 31jan. -dez. 2023.
Article in English, Portuguese | LILACS-Express | LILACS | ID: biblio-1526041

ABSTRACT

Objetivo: avaliar prevalência e impacto da sobrecarga e da depressão na qualidade de vida de 102 cuidadores de idosos cadastrados no Programa Melhor em Casa. Método: estudo analítico transversal aprovado pelo Comitê de Ética e Pesquisa. Realizado entre junho e novembro 2022, em Juiz de Fora (MG/Brasil), com amostra censitária e aplicação de formulário sociodemográfico, da Escala de Zarit, do Inventário de Depressão de Beck e do questionário de qualidade de vida da Organização Mundial de Saúde (WHOQOL-bref). Foram utilizados Teste t de Student, Mann-Whitney e regressão linear múltipla, com nível de significância de 5%. Resultados: observou-se sobrecarga em 69,6% dos cuidadores, além da presença de sintomas sugestivos de depressão em 41,1% da população em estudo. Conclusão: a sobrecarga esteve associada a piora da qualidade de vida nos domínios físico, psicológico e de relação social, enquanto a depressão esteve associada a piora da qualidade de vida nos domínios psicológico e de avaliação geral.


Objective: to evaluate the prevalence and impact of overload and depression on the quality of life of 102 caregivers of elderly people registered in the Melhor em Casa Program. Method: cross-sectional analytical study approved by the Research Ethics Committee. Carried out between June and November 2022, in Juiz de Fora (MG/Brazil), with a census sample and application of a sociodemographic form, the Zarit Scale, the Beck Depression Inventory and the World Health Organization's quality of life questionnaire (WHOQOL-bref). Student's t-test, Mann-Whitney test and multiple linear regression were used, with a significance level of 5%. Results: overload was observed in 69.6% of caregivers, in addition to the presence of symptoms suggestive of depression in 41.1% of the study population. Conclusion: overload was associated with worsening quality of life in the physical, psychological and social relationship domains, while depression was associated with worsening quality of life in the psychological and general evaluation domains.


Objetivo: evaluar la prevalencia y el impacto de la sobrecarga y la depresión en la calidad de vida de 102 cuidadores de ancianos registrados en el Programa Melhor em Casa (Mejor en casa). Método: estudio analítico transversal aprobado por el Comité de Ética en Investigación. Realizado entre junio y noviembre de 2022, en Juiz de Fora (MG/Brasil), con muestra censal y aplicación de un formulario sociodemográfico, la Escala de Zarit, el Inventario de Depresión de Beck y el cuestionario de calidad de vida de la Organización Mundial de la Salud (WHOQOL-bref). Se utilizó la prueba t de Student, la prueba de Mann-Whitney y la regresión lineal múltiple, con un nivel de significancia del 5%. Resultados: se observó que el 69,6% de los cuidadores sentían sobrecarga, además de algunos síntomas sugestivos de depresión en el 41,1% de la población de estudio. Conclusión: la sobrecarga se asoció con un empeoramiento de la calidad de vida en los dominios físico, psicológico y de relaciones sociales, mientras que la depresión se asoció con un empeoramiento de la calidad de vida en los dominios psicológico y de evaluación general.

3.
Rev. latinoam. enferm. (Online) ; 31: e3888, ene.-dic. 2023. tab, graf
Article in English | LILACS, BDENF | ID: biblio-1431834

ABSTRACT

Abstract Objective: to evaluate how different educational strategies contribute to knowledge gains perceived by caregivers of people using Enteral Nutritional Therapy. Method: a quasi-experimental study conducted in two stages: the first one included an interactive lecture class (LC) and the second was carried out in two groups: in-situ simulated skills training (ST) and reading of an educational booklet (EB). The caregivers answered a self-administered questionnaire to assess knowledge before and after the interventions; for the analysis, a generalized linear model with Poisson distribution was proposed and the comparisons were carried out using orthogonal contrasts. Results: the participants were 30 caregivers; evidence of a difference in knowledge between the t1and t0 moments is evidenced. The analysis of the final comparison about the knowledge gain between the EB and ST groups, according to Student's t, evidenced an estimated difference of -1,33, with 95% CI (-4.98; 2.31) and p-value=0.46. Conclusion: knowledge was further increased between the t1 and t0 moments, when compared to the t2 and t1 moments in both groups. When compared, we cannot conclude that one of the groups changed more than the other in relation to moment t0 and t2; thus, the study evidenced the knowledge gain after all the educational strategies in both groups.


Resumo Objetivo: avaliar como diferentes estratégias educativas contribuem para ganhos de conhecimento percebidos por cuidadores de pessoas em uso da Terapia Nutricional Enteral. Método: estudo quase-experimental realizado em duas etapas; a primeira contemplou uma aula expositiva dialogada (AE) e a segunda aconteceu em dois grupos: treino de habilidades (TH) simulado in situ e leitura da cartilha educativa (CE). Os cuidadores responderam um questionário autoaplicável para avaliação de conhecimentos em pré e pós-intervenções; para a análise foi proposto um modelo linear generalizado com distribuição Poisson e as comparações foram realizadas por contrastes ortogonais. Resultados: participaram 30 cuidadores, observou-se evidência de diferença de conhecimento entre os tempos t1 e t0. A análise da comparação final sobre o aumento do conhecimento entre os grupos CE e TH, por teste t-Student, evidenciou uma diferença estimada de -1,33, com IC 95% (-4,98; 2,31) e valor de p de 0,46. Conclusão: ocorreu uma maior elevação de conhecimento entre os tempos t1 e t0, quando comparada os tempos t2 e t1 em ambos os grupos. Quando comparados, não podemos concluir que um dos grupos mudou mais que o outro em relação aos tempos t0 e t2; assim, o estudo evidenciou o ganho de conhecimento após todas as estratégias educativas nos dois grupos.


Resumen Objetivo: evaluar cómo las diferentes estrategias educativas contribuyen a la adquisición de conocimiento percibida por los cuidadores de personas que utilizan Terapia Nutricional Enteral. Método: estudio cuasiexperimental realizado en dos etapas; la primera incluyó una clase expositiva dialogada (CE) y la segunda se desarrolló en dos grupos: entrenamiento de habilidades (EH) simuladas in situ y lectura del folleto educativo (FE). Los cuidadores respondieron un cuestionario autoadministrado para evaluar el conocimiento pre-posintervenciones; para el análisis se propuso un modelo lineal generalizado con distribución de Poisson y las comparaciones se realizaron mediante contrastes ortogonales. Resultados: participaron 30 cuidadores, había evidencias de la diferencia de conocimiento entre los tiempos t1 y t0. El análisis de la comparación final sobre el aumento de conocimientos entre los grupos FE y EH, mediante la prueba t de Student, mostró una diferencia estimada de -1,33, con un IC del 95% (-4,98; 2,31) y un valor de p de 0,46. Conclusión: hubo un mayor aumento del conocimiento entre los tiempos t1 y t0, que entre los tiempos t2 y t1 en ambos grupos. Al compararlos, no podemos concluir que uno de los grupos cambió más que el otro entre t0 y t2; por lo tanto, el estudio demostró que hubo adquisición de conocimiento después de todas las estrategias educativas en ambos grupos.


Subject(s)
Humans , Students , Health Education , Caregivers/education , Enteral Nutrition , Simulation Training
4.
Rev. nav. odontol ; 50(2): 15-21, 20232010.
Article in Portuguese, English | LILACS-Express | LILACS | ID: biblio-1518561

ABSTRACT

O Serviço Integrado da Assistência Domiciliar (SIAD) foi criado a fim de prestar atendimento integral domiciliar a idosos que apresentam incapacidade de se locomover para as unidades de atendimento de saúde da Marinha do Brasil (MB). Com a finalidade de avaliar o perfil de saúde geral e de higiene dental desses pacientes, foi realizado um estudo transversal, quantitativo e descritivo, no qual foram incluídos idosos com 60 anos ou mais, assistidos entre fevereiro de 2017 a dezembro de 2022. Pode-se observar que a maioria dos idosos eram longevos, com média de idade de 82,52 anos (±8,66), mulheres (63,52%) e possuíam dependência total para realizar atividades básicas de vida diária (88,9%). Conclui-se que a síndrome demencial foi o diagnóstico principal mais encontrado (44,3%), a maioria possuía comorbidade associada (71,9%), sendo a Hipertensão Arterial Sistêmica (59,2%) e o Diabetes Mellitus (28,9%) as mais recorrentes. Foi encontrada uma elevada prevalência de idosos domiciliados com higiene bucal insatisfatória (34,7%) ou irregular (57,2%). No entanto, não houve associação entre higiene dental, comorbidades e grau de dependência. Assim sendo, é imprescindível que os idosos domiciliados recebam orientações e sejam submetidos a um acompanhamento rigoroso e constante, juntamente com seus cuidadores, a fim de promover a melhoria da higiene oral desses pacientes.


The Integrated Home Assistance Service (IHAS) was created to provide integral home care for elderly people who are unable to go to the health care units of the Brazilian Navy. A cross-sectional, quantitative, and descriptive study was carried out to evaluate the general health and dental hygiene profile of these patients. The study included elderly people aged 60 years or older who were assisted between February 2017 and December 2022. Most of them were long-lived, with a mean age of 82.52 (±8.66) years, women (63.52%) and totally dependent on performing basic activities of daily living (88.9%). The most common diagnosis among them was dementia syndrome, accounting for 44.3% of cases. Additionally, a large portion of the elderly had associated comorbidities (71.9%), with Systemic Arterial Hypertension (59.2%) and Diabetes Mellitus (28.9%) as the most recurrent conditions. The study found a high prevalence of elderly with unsatisfactory (34.7%) or irregular (57.2%) oral hygiene. Nevertheless, there was no significant association between dental hygiene and comorbidities or the degree of dependence. Therefore, it is imperative that elderly people living at home receive guidance and undergo meticulous and ongoing monitoring, in conjunction with their caregivers to promote improvements in the oral hygiene of these patients.

5.
Saúde debate ; 47(138): 707-716, jul.-set. 2023. tab, graf
Article in Portuguese | LILACS-Express | LILACS | ID: biblio-1515579

ABSTRACT

RESUMO Os serviços de Cuidados Paliativos Domiciliares especializados no tratamento de pacientes oncológicos têm como objetivo identificar e controlar sintomas físicos, psicossociais e espirituais em domicílio. Alguns desafios encontrados são a complexidade de sintomas, a sobrevida reduzida dos pacientes com câncer avançado e limitações do sistema de saúde. Para estratificar a prioridade de atendimento dos pacientes com câncer avançado em Cuidados Paliativos Domiciliares, foi elaborado um protocolo de classificação de risco. Este artigo é um relato de experiência sobre o processo de elaboração de um protocolo de classificação de risco para pacientes com câncer avançado atendidos em um serviço de Cuidados Paliativos Domiciliares no Rio de Janeiro. A etapa inicial envolveu reuniões da equipe da Assistência Domiciliar de um hospital oncológico e buscas estruturadas na literatura. Depois, foram listadas as situações clínicas de manejo mais complexo no domicílio, chamadas de sinais e sintomas de alerta: dor, falta de ar, náuseas/ vômitos, sangramento e confusão mental aguda. Elaborou-se um protocolo de avaliação e classificação de risco com cinco categorias/cores, para determinar a prioridade de atendimento dos pacientes. O sistema de triagem desenvolvido possui fácil aplicabilidade e requer um treinamento breve do profissional de saúde para que possa ser utilizado durante os atendimentos domiciliares.


ABSTRACT Home-based Palliative Care services specialized in the treatment of cancer patients aim to identify and control physical, psychosocial, and spiritual symptoms at home. Some challenges encountered are the complexity of symptoms, reduced survival of patients with advanced cancer, and limitations of the health care system. To stratify the priority of care for patients with advanced cancer in home Palliative Care, a risk classification protocol was developed. This article is an experience report on the process of creating a risk classification protocol for patients with advanced cancer treated at a home Palliative Care service in Rio de Janeiro. The initial stage involved meetings of the home care team at an oncology hospital and structured searches in the literature. Afterwards, the clinical situations of more complex management at home were listed and named as warning signs and symptoms: pain, shortness of breath, nausea/ vomiting, bleeding, and acute mental confusion. An assessment and triage protocol was developed with five categories/colors to determine the priority of patient care. The developed triage system has easy applicability and requires a brief training of the health professional so that it can be used during home visits.

6.
Rev. bras. med. fam. comunidade ; 18(45): 3528, 20230212.
Article in English, Portuguese | LILACS-Express | LILACS | ID: biblio-1517960

ABSTRACT

Introdução: Os cuidados paliativos são voltados para o controle de sintomas físicos, sociais, espirituais e emocionais. Atualmente, há no Brasil um cenário de acúmulo de pacientes em situação de terminalidade, o que contribui para que o país seja apontado como o 3º pior lugar para se morrer. A desospitalização, com cuidado prestado pela Atenção Domiciliar, é apontada como uma forma de aprimorar a qualidade de vida dos pacientes e reduzir os custos para o Sistema de Saúde. Objetivo: Identificar o perfil dos pacientes em cuidados paliativos assistidos pelo Serviço de Atenção Domiciliar de Divinópolis-MG, bem como as intervenções realizadas e sua efetividade. Métodos: Estudo de caráter descritivo, realizado a partir da análise retrospectiva de prontuários de pacientes que receberam alta do Serviço de Atenção Domiciliar de Divinópolis-MG entre 2020 e 2021, com coleta quantitativa dos seguintes dados: sexo, idade, endereço de moradia, equipe multiprofissional de atenção domiciliar responsável pelo atendimento, tipo de enfermidade, intervenções realizadas pelas equipes do Serviço de Atenção Domiciliar, efetividade das intervenções feitas pelas equipes do Serviço de Atenção Domiciliar, sintomas apresentados, eficácia do controle sintomático e razão da alta do serviço. Resultados: Foram coletados os dados de 72 prontuários; a partir disso, constatou-se uma faixa etária média de 67,38 anos, com predomínio de atendimentos a pacientes do sexo feminino e de acometimento por enfermidades neurodegenerativas. Em relação aos sintomas apresentados nos prontuários, 54 foram tratados de forma eficaz, 23 de forma ineficaz e 22 não foram tratados. As altas por controle sintomático representaram 43,04% do total. Conclusões: Ressalta-se a capacidade do Serviço de Atenção Domiciliar de manejar adequadamente os pacientes elegíveis para os cuidados paliativos, a fim de controlar sintomas ­ físicos, sociais, psicológicos e familiares ­, contribuindo para a melhoria da qualidade de vida do paciente e de seu círculo social.


Introduction: Palliative care (PC) is aimed at controlling physical, social, spiritual and emotional symptoms. In Brazil, there is currently a scenario of accumulation of terminally ill patients, which contributes to the country being considered the 3rd worst to die in. Dehospitalization, with patients attended to by a home care service (HCS), is seen as a way to improve patients' quality of life and reduce costs for the national health system. Objective: To identify the profile of patients in PC assisted by the HCS of Divinópolis-MG, as well as the service's interventions and their effectiveness. Methods: Descriptive study carried out from the retrospective analysis of medical records of patients who were discharged from the HCS of Divinópolis-MG between 2020-2021, with quantitative collection of the following data: sex, age, home address, responsible multidisciplinary home care team (EMAD), type of illness, interventions of HCS teams, effectiveness of HCS interventions, symptoms presented, effectiveness of symptom control and reason for discharge from the service. Results: Data were collected from 72 medical records, from which, an average age of 67 years was found, with a predominance of female patients and neurodegenerative diseases. Regarding the symptoms presented in the medical records, 54 were treated effectively and 23 ineffectively, and 22 were not treated. Discharges for symptom control accounted for 43% of the total. Conclusion: The HCS's ability to adequately manage patients eligible for PC is highlighted, to control symptoms ­ physical, social, psychological and family ­ , contributing to the improvement of the quality of life of the patient and their social circle.


Introducción: Los cuidados paliativos (CP) están dirigidos a controlar los síntomas físicos, sociales, espirituales y emocionales. Actualmente, en Brasil, hay un escenario de acumulación de enfermos terminales, lo que contribuye a que el país sea señalado como el 3º peor en morir. La deshospitalización, con atención domiciliaria, es vista como una forma de mejorar la calidad de vida de los pacientes y reducir costos para el Sistema de Salud. Objetivo: Identificar el perfil de los pacientes en CP asistidos por SAD en Divinópolis-MG , así como las intervenciones realizadas y su efectividad. Métodos: Estudio descriptivo, realizado a partir del análisis retrospectivo de prontuarios de pacientes que fueron dados de alta del Servicio de Atención Domiciliaria (SAD) de Divinópolis-MG entre 2020-2021, con recolección cuantitativa de los siguientes datos: sexo, edad, domicilio de vivienda, EMAD responsable de la atención, tipo de enfermedad, intervenciones realizadas por los equipos SAD, efectividad de las intervenciones realizadas por los equipos SAD, síntomas presentados, efectividad del control sintomático y motivo de alta del servicio. Resultados: Se recogieron datos de 72 prontuarios, de los cuales se encontró una edad promedio de 67 años, con predominio de pacientes del sexo femenino y enfermedades neurodegenerativas. En cuanto a los síntomas presentados en las historias clínicas, 54 fueron tratados de manera efectiva, 23 de manera ineficaz y 22 no fueron tratados. Las altas por control sintomático representaron el 43% del total. Conclusiones: Se destaca la capacidad del SAD para manejar adecuadamente a los pacientes elegibles para CP, con el fin de controlar los síntomas -físicos, sociales, psicológicos y familiares-, contribuyendo a la mejora de la calidad de vida del paciente y su círculo social.

7.
Article | IMSEAR | ID: sea-220216

ABSTRACT

Purpose: Home-based prophylaxis in hemophilia facilitates the treatment of patients with hemophilia (PwH) at home resulting in an improved quality of life, experiencing less pain and greater flexibility in daily activities. This literature studies the cost effectivity and adherence to prophylaxis treatment after the implementation of home-based prophylaxis therapy in PwH registered under the Hemophilia Treatment Centre (HTC) of Assam Medical College and Hospital. Materials and Methods:?PwH and their parents were advised for self/home infusion after being trained by a medical professional for 6 months. Data were collected on the skip in prophylaxis treatment by PwH and their traveling cost to access the prophylaxis treatment before and after the implementation of home infusion, through questionnaire and telephonic interview. Results:?The mean number of days of skip in prophylaxis was significantly reduced from 25 (±11) to 4 (±2) days after implementation of home infusion. The mean transportation cost was also found to be significantly decreased from Rs. 3297 (±2251) to 440 (±279). Before home/self-infusion, 77% of the registered PwH were found to skip prophylaxis doses more than 12 times a year but after home infusion, no PwH were found to skip more than 12 doses a year. Conclusion:?Home therapy facilitates the PwH to strictly adhere to the prophylaxis regime significantly reducing the skipping of doses to be administered to the PwH. The risks of regular traveling and the burden of transportation expenditure to avail the prophylaxis treatment was also found to be reduced significantly.

8.
Rev. Assoc. Med. Bras. (1992, Impr.) ; 69(1): 101-106, Jan. 2023. tab
Article in English | LILACS-Express | LILACS | ID: biblio-1422591

ABSTRACT

SUMMARY OBJECTIVE: The nutritional status of frail elderly people receiving home health services should be evaluated. This study aimed to determine the nutritional status of patients aged ≥65 years registered in the Home Healthcare Services unit and investigate the factors that may be associated with malnutrition. METHODS: This cross-sectional descriptive study was conducted during routine visits to patients and their caregivers. A total of 161 patients were asked to fill in surveys asking about sociodemographic characteristics, patient history, and clinical status. Anthropometric measurements were taken from all patients. The Mini Nutritional Assessment Short Form was applied to the patients for screening purposes. Patients who scored ≤11 on the Mini Nutritional Assessment Short Form were then asked to complete the full Mini Nutritional Assessment form. RESULTS: According to the Mini Nutritional Assessment Short Form and Mini Nutritional Assessment tests, almost half of the elderly patients included in the study (49.7%, n=161) were malnourished or at risk of malnutrition. Analyses showed that those who had COVID-19 [odds ratio (OR): 9.423, 95%CI 2.448-36.273) and those diagnosed with dementia/depression (OR: 8.688, 95%CI 3.246-23.255) were more likely to be malnourished, whereas those with diabetes (OR: 0.235, 95%CI 0.084-0.657) were less likely to have malnutrition. Strikingly, those who were fed by caregivers (OR: 15.061, 95%CI 3.617-62.710) were also more likely to be malnourished than those with self-feeding ability. CONCLUSION: Malnutrition or the risk of malnutrition is common in elderly patients receiving home care services. Many factors can have an impact on malnutrition.

9.
Chinese Journal of Practical Nursing ; (36): 1972-1978, 2023.
Article in Chinese | WPRIM | ID: wpr-990436

ABSTRACT

Objective:To investigate the home care needs and home resource integration expectations of elderly patients after hip fracture surgery so as to provide health care guidance after discharge.Methods:A mixed study method of consistent parallel design was used to conduct semi-structured interviews in 15 elderly patients after hip fracture surgery. Meanwhile, convenient sampling method was used to select elderly patients after hip fracture surgery to conduct health survey with interRAI-HC(International Resident Assessment Instrument Home Care), and comprehensive data results were analyzed.Results:Through the analysis and induction of the interview data, two main themes were extracted: the diversification of home care needs and the lack of integration of home service resources. There were 25 health problems in the elderly after hip fracture surgery. Health problems mainly focus on ADL limitation, insufficient social activity, limited social interaction, clinical health problems (fall risk, malnutrition, pain, cardiovascular and respiratory problems, weakness, fatigue), etc.Conclusions:For elderly patients after hip fracture surgery, it is necessary to strengthen the rehabilitation guidance at discharge, integrate home care resources to provide diversified nursing services in the transitional stage, promote the formation and continuity of patients' rehabilitation behavior, and improve the clinical outcome of patients.

10.
Chinese Journal of Practical Nursing ; (36): 1263-1270, 2023.
Article in Chinese | WPRIM | ID: wpr-990328

ABSTRACT

Objective:To investigate the demand and influencing factors of home care social support services for the elderly with dementia in urban areas, and provide a decision-making basis for improving home care social support services for the elderly with dementia.Methods:This was a cross-sectional study. From March 2021 to March 2022, 386 family caregivers of elderly people with dementia were randomly selected from tertiary hospitals in four central urban areas of Wuhan by stratified sampling method. A questionnaire was used to investigate the current situation and attributes of the demand for home care social support services for the elderly with dementia in urban areas. The importance of the demand for home care social support services for the elderly with dementia in urban areas was calculated by the Better-Worse coefficient method and sensitivity formula method. The optimal scale regression model was used to analyze the influencing factors and influencing forces of independent variables on service demand.Results:The score of social support service demand for home care was (88.6 ± 29.71) points. The Better coefficient of demand for all social support services was greater than the absolute value of the Worse coefficient. One requirement (pressure ulcer prevention and treatment guidance) was a one-dimensional attribute, and the remaining 29 items were charm attributes. The top 6 items in importance ranking were 2 items of informational support (pressure ulcer prevention and treatment guidance; telephone counselling guidance for family caregivers), 1 items of instrumental support (financial assistance for family caregivers) and 3 items of social companionship support(cultural recreation/physical activity activities, door-to-door accompaniment, accompany the elderly to social activities). Optimal scale regression model test: all four models of social support service demand were statistically significant ( F values were 2.75-4.23, all P <0.01). The gender, education level, number of children of the elderly with dementia, age,education level, self rated physical condition of family caregivers, the average monthly income of families, and the relationship between family caregivers and the elderly with dementia were the influencing factors of self-esteem support (all P<0.05). The educational level, marital status, type of dementia of the elderly with dementia, educational level, self rated physical condition of family caregivers, the average monthly income of the family, and the relationship between family caregivers and the elderly with dementia were the influencing factors of informational support (all P <0.05). The educational level and type of dementia of the elderly with dementia, the educational level, self rated physical condition of family caregivers, and the average monthly income of families were the influencing factors of social companionship support (all P <0.05). The type of dementia of the elderly with dementia, the self rated physical condition of family caregivers, the average monthly income of families, and the relationship between family caregivers and elderly relatives were the influencing factors of instrumental support (all P <0.05). Five times for caregiver human resources, 3 times for family economic resources and 3 times for the elderly with dementia, and 1 time for relatives resource factors were the top 3 times of independent variable influence force entered the ranking. Conclusions:The demand for social support services for home care of the elderly with dementia is low, with the characteristics of expectant tendency and centralized demand. The provision of home-based care social support services should give priority to meeting the needs of "pressure ulcer prevention and treatment guidance", and provide financial assistance, counseling and guidance, social companionship and other services as much as possible. Caregiver human resources are the key factors affecting home care social support services, family economic resources and the elderly with dementia are important factors, it is recommended to fully tap the potential of relatives resources and community resources.

11.
Palliative Care Research ; : 117-122, 2023.
Article in Japanese | WPRIM | ID: wpr-986282

ABSTRACT

We devised IMADOKO as a tool to confirm the current status of terminal cancer patients and are using it in the home care team. In this study, we retrospectively investigated the actual state of end-of-life care to clarify the impact of IMADOKO on decision-making support for terminal cancer patients and their families. The subjects were 64patients (male/female, 38/26) before IMADOKO introduction, and 140 patients (male/female, 78/62) after the introduction, with an average age of 74 years in both cases and the primary lesions were the pancreas, lung, and the gastrointestinal tract. The rate of death at home increased significantly after the introduction of IMADOKO, compared to before. In the IMADOKO introduced group, IMADOKO was used in 108 patients and all their families. The use of IMADOKO for the patient was not related to the location of death, but it significantly improved communication between the patient and family, and between patient/patient's family and medical staff. It was shown that IMADOKO may be useful for decision-making support in choosing a better place of recuperation.

12.
Palliative Care Research ; : 55-60, 2023.
Article in Japanese | WPRIM | ID: wpr-966075

ABSTRACT

The purpose of this study was to examine the impact of COVID-19 on home care at the end of life and the satisfaction of bereaved families. A questionnaire survey was conducted on 100 bereaved families of terminal cancer patients who were receiving home care. The effects of the COVID-19 on at-home medical treatment and the rate of satisfaction of bereaved families were examined. The response rate for this survey was 72.0%. Of the respondents, 52.8% of the bereaved families answered that the COVID-19 had an effect on their decision to choose home care. The rate of satisfaction of bereaved families was 98.6%. Even for terminal cancer patients who chose home care in the era of COVID-19 at our hospital, we were able to achieve high level of satisfaction for bereaved families.

13.
Palliative Care Research ; : 165-170, 2023.
Article in Japanese | WPRIM | ID: wpr-985414

ABSTRACT

Mohs paste (MP) is a topical treatment that can help relieve the symptoms of self-destructive skin lesions caused by malignant tumors. Despite the potential benefits of MP in improving the quality of life of patients, its use in home-based care is limited due to various obstacles. In this study, we developed a 1-mm-thick MP gauze sheet, which allowed us to apply the MP treatment at home to a patient with breast cancer. After three weekly treatments, the patient’s main symptoms, including itchiness, odor caused by exudates, and mobility issues, showed improvement. By using MP as a sheet, we overcame the obstacles associated with its use, such as alterations in the physical properties and the risk of damage to healthy skin tissue. Additionally, we reduced the treatment duration and need for trained personnel. Our findings suggest that the MP treatment can effectively control the symptoms of patients in home-based care, consistent with prior research.

14.
Journal of International Health ; : 53-64, 2023.
Article in Japanese | WPRIM | ID: wpr-985377

ABSTRACT

Introduction  With the increase in the number of foreign residents in Japan and the aging of the population, it is expected that there will be more opportunities to provide home-visit rehabilitation to foreign residents are increasing. The purpose of this study was to clarify the difficulties that physical therapists (PTs) face when providing home-visit rehabilitation to elderly foreign residents.Methods  A qualitative descriptive study using semi-structured interviews was conducted with PTs who have experience in providing home-visit rehabilitation to elderly foreign residents.Results  The subjects were 11 PTs (9 males and 2 females), with an average age of 39.3 years and the average years of PT experience 13.7 years. The analysis revealed that the difficulties faced by PTs included 10 categories; [Differences in rehabilitation concepts with foreign elderly], [Difficulty in goal setting], [Lack of multilingual support and access to information on support], [Burden of dealing with non-rehabilitation work], [Building trust through daily communication], [Detailed communication in different languages], [Dealing with cultural differences], [Differences in religion and sensitivity to this topic], [Dealing with elderly foreign residents who are hesitant to contact with Japanese people] and [Anxiety about conducting home-visit rehabilitation due to PT’s preconceived notions about foreigners].Conclusions  Differences in the rehabilitation concepts between Japan and some foreign countries were found as a difficulty faced by PTs. Difficulties due to language differences were significant, and institutional difficulties also existed, such as lack of multilingual support and access to information on support. In addition, by visiting private homes and providing individualized services, PTs sometimes had to deal with problems faced by elderly foreign people other than rehabilitation work. These were considered to make it difficult to implement goal-oriented rehabilitation.

15.
Belo Horizonte; s.n; 2023. 144 p. ilus, tab.
Thesis in Portuguese | LILACS, BDENF, ColecionaSUS | ID: biblio-1532307

ABSTRACT

Introdução: A assistência à saúde no domicílio configura-se como uma modalidade de cuidado em expansão no cenário mundial e a enfermagem integra a equipe multiprofissional, sendo a maior provedora de assistência domiciliar. No contexto de especificidades da atenção domiciliar, o enfermeiro é constantemente desafiado a mobilizar conhecimentos, habilidades e atitudes de forma inter-relacionada e espera-se que seja competente na prática profissional. O objetivo deste estudo foi analisar as competências mobilizadas por enfermeiros na atenção domiciliar no dia a dia do seu trabalho. Método: estudo de abordagem qualitativa com delineamento metodológico de estudo de caso único. A produção dos dados teve como cenário o serviço de atenção domiciliar do Sistema Único de Saúde do município de Belo Horizonte. Participaram da pesquisa 12 enfermeiros que compõem equipes multiprofissionais de atendimento domiciliar. As fontes de evidência foram a análise documental, entrevistas guiadas por um roteiro semiestruturado com foco em competências e grupo focal. Os dados foram submetidos à Análise de Discurso Crítica, na perspectiva de Fairclough, possibilitando a discussão de duas categorias empíricas: competências do enfermeiro para atuação na atenção domiciliar; e situações que promovem a mobilização das competências. Resultados: identificou-se um conjunto de dezessete competências mobilizadas pelos enfermeiros do serviço de atenção domiciliar, quais sejam: liderança, comunicação, tomada de decisão, avaliação holística do paciente e ambiente domiciliar, gestão do trabalho, gestão do cuidado, educação em saúde, sensibilidade cultural, assistência de enfermagem, trabalho em equipe, colaboração interdisciplinar, trabalho em rede, gestão de recursos materiais, gestão do tempo, desenvolvimento profissional, adaptação à tecnologia e segurança para o trabalho. Para cada uma das competências foram apontados e discutidos os atributos relacionados a conhecimentos, habilidades e atitudes. Os discursos revelaram que as competências são mobilizadas por situações relacionadas as particularidades da atenção domiciliar, singularidade do contexto domiciliar e demandas profissionais. Conclusão: a prática dos enfermeiros na atenção domiciliar mobiliza diversas competências compreendidas como uma necessidade no dia a dia do trabalho.


Introduction: Home health care is an expanding modality of care on the world stage and the nurse is part of the multidisciplinary team, being the largest provider of home care. In the context of specificities of home care, nurses are constantly challenged to mobilize knowledge, skills and attitudes in an interrelated way and are expected to be competent in professional practice. The objective of this study was to analyze the skills mobilized by nurses in home care in their day-to-day work. Method: qualitative approach study with a single case study methodological design. Data production took place in home care service of the Unified Health System in the city of Belo Horizonte. 12 nurses who make up multidisciplinary home care teams participated in the research. The sources of evidence were documents analysis, interviews guided by a semi-structured script focusing on skills and focus groups. The data were submitted to Critical Discourse Analysis, from Fairclough 's perspective, enabling the discussion of two empirical categories: nurse skills to work in home care; and situations that promotes the mobilization of skills. Results: a set of seventeen skills mobilized by nurses in home care service were identified, namely: leadership, communication, decision making, holistic assessment of the patient and home environment, work management, care management, health education, cultural sensitivity, nursing care, teamwork, interdisciplinary collaboration, networking, material resource management, time management, professional development, adaptation to technology and work safety. For each of the competencies, attributes related to knowledge, skills and attitudes were highlighted and discussed. The speeches revealed that skills are mobilized by situations related to the particularities of home care, the uniqueness of the home context and professional demands. Conclusion: the practice of nurses in home care mobilizes several skills understood as a necessity in day-to-day work.


Subject(s)
Home Health Nursing , Home Care Services , Professional Competence , Unified Health System , Academic Dissertation , Work Performance
16.
Arq. ciências saúde UNIPAR ; 27(5): 3283-3302, 2023.
Article in Portuguese | LILACS-Express | LILACS | ID: biblio-1435187

ABSTRACT

Introdução: O avanço tecnológico e as constantes mudanças mundiais para aumentar a qualidade de vida, e consequentemente o aumento da expectativa de vida, no entanto nem sempre isso é possível devido ao adoecimento crônico e o desencadeamento da necessidade de cuidados paliativos. Objetiva-se analisar sobre a gestão do cuidado paliativo em domicílio na perspectiva de enfermeiros de um município do oeste do paraná. Metodologia: trata-se de uma pesquisa exploratória, com abordagem qualitativa realizada com enfermeiros que atuam no Programa de Assistência e Internação Domiciliar (PAID) do município do Oeste do Paraná. A autorização para a realização da pesquisa foi solicitada junto à Secretaria Municipal de Saúde (SMS) do município pesquisado. Após autorização da (SMS e PAID) e aprovação do Comitê de Ética e Pesquisa da Unipar deu-se início a coleta de dados que aconteceu nos meses de setembro e outubro de 2022. Para análise dos dados, utilizou-se análise de conteúdo de Bardin. Principais Resultados foram organizados em cinco categorias: Os enfermeiros na gestão dos cuidados paliativos no domicílio; Ferramentas para a organização do cuidado paliativo no domicílio; A contribuição da família e do cuidador para atenção domiciliar; Desafios no trabalho com cuidados paliativos no domicílio; O trabalho em equipe como estratégia de gestão do cuidado na atenção domiciliar. Conclusões: O estudo evidenciou que os enfermeiros que atuam no Programa de Assistência e Internação Domiciliar são gestores dos cuidados paliativos no domicílio, tendo a equipe multiprofissional e a família como aliados e suporte em seu processo de trabalho direcionados ao indivíduo em cuidados paliativos e enfrentam desafios de diferentes naturezas em sua prática, sendo eles relacionados a aspectos como: a operacionalização da rotina de trabalho diante das diversas demandas do território local; ao campo de atuação e a rede deficitária de suporte ao paciente e a família; e de comunicação/acolhimento aos pacientes e familiares em um cenário que favorece a fragilidade emocional de todos os envolvidos nesse processo de cuidado.


Introduction: Technological advances and constant world changes to in- crease the quality of life, and consequently the increase in life expectancy, however this is not always possible due to chronic illness and triggering the need for palliative care.Ob- jective is to analyze the management of palliative care at home from the perspective of nurses in a municipality in western Paraná. Methodology: this is exploratory research, with a qualitative approach, carried out with nurses who work in the Home Assistance and Hospitalization Program (PAID) in the city of Western Paraná. Authorization to carry out the research was requested from the Municipal Health Secretariat (SMS) of the rese- arched municipality. After authorization from (SMS and PAID) and approval from Uni- par's Ethics and Research Committee, data collection began in September and October 2022. Bardin's content analysis was used for data analysis. Results were organized into five categories: Nurses managing palliative care at home; Tools for organizing palliative care at home; The contribution of the family and the caregiver to home care; Challenges in working with palliative care at home; Teamwork as a care management strategy in home care. Conclusions: The study showed that the nurses who work in the Home Assis- tance and Hospitalization Program are managers of palliative care at home, with the mul- tidisciplinary team and the family as allies and support in their work process, aimed at the individual in palliative care and facing challenges of different natures in their practice, being related to aspects such as: the operationalization of the work routine in face of the different demands of the local territory; the field of action and the deficient support network for the patient and family; and communication/welcoming patients and family members in a scenario that favors the emotional fragility of all those involved in this care process.


Introducción: Los avances tecnológicos y los constantes cambios mundiales para aumentar la calidad de vida, y en consecuencia el aumento de la esperanza de vida, sin embargo esto no siempre es posible debido a las enfermedades crónicas y desencade- nar la necesidad de cuidados paliativos.Objetivo es analizar la gestión de los cuidados paliativos en el hogar desde la perspec-tiva de las enfermeras de un municipio en el oeste de Paraná. Metodología: se trata de una investigación exploratoria, con abordaje cualita- tivo, realizada con enfermeros que actúan en el Programa de Asistencia Domiciliaria y Hospitalización (PAID) de la ciudad de Paraná Oeste. La autorización para la realización de la investigación fue solicitada a la Secretaría Municipal de Salud (SMS) del municipio investigado. Después de la autorización de (SMS y PAID) y de la aprobación del Comité de Ética e Investigación de la Unipar, se inició la recolección de datos en septiembre y octubre de 2022. Para el análisis de los datos se utilizó el análisis de contenido de Bardin. Los resultados fueron orga-nizados en cinco categorías: Enfermeras que gestionan los cuidados paliativos en el domicilio; Herramientas para organizar los cuidados paliativos en el domicilio; La contribución de la familia y del cuidador en la atención domiciliaria; Retos en el trabajo con cuidados paliativos en el domicilio; El trabajo en equipo como estrategia de gestión de los cuidados en la atención domiciliaria. Conclusiones: El estudio demostró que las enfermeras que trabajan en el Programa de Asistencia Domiciliaria y Hospitalización son gestoras de cuidados paliativos en el domicilio, con el equipo multi- disciplinar y la familia como aliados y apoyo en su pro-ceso de trabajo, dirigido al indi- viduo en cuidados paliativos y enfrentando desafíos de diferente naturaleza en su práctica, estando relacionados con aspectos como: la operacionalización de la rutina de trabajo frente a las diferentes demandas del territorio local; el campo de actuación y la deficiente red de apoyo al paciente y a la familia; y la comunicación/acogida de pacientes y famili- ares en un escenario que favorece la fragilidad emocional de todos los involucrados en este proceso de cuidados.

17.
Article in English, Portuguese | LILACS, BDENF | ID: biblio-1426532

ABSTRACT

Objetivo: identificar os fatores associados à visita à emergência ou hospitalização dos pacientes oncológicos em cuidados paliativos domiciliares. Método: revisão integrativa nas bases PubMed, LILACS, Web of Science e Embase. Perguntou-se "quais os fatores associados à visita a serviços de emergência ou hospitalização de pacientes oncológicos em cuidados paliativos domiciliares?". Descritores foram neoplasias; cuidados paliativos; hospitalização; serviços médicos de emergência; serviços de assistência domiciliar. Critérios de elegibilidade foram texto na íntegra; entre 2012 e 2022; idioma inglês, português ou espanhol; idade adulta. Resultados:foram selecionados 16 artigos. As causas mais comuns de visita à emergência/hospitalização foram dor, falta de ar, infecção, sintomas digestivos, delirium e queda do estado geral/fadiga. Conclusão: este estudo identificou lacunas em que os cuidados paliativos domiciliares podem ser aprimorados.


Objective: to identify the factors associated with the emergency visit or hospitalization of cancer patients in palliative home care. Method: integrative review in PubMed, LILACS, Web of Science and Embase. The question was "what factors are associated with visiting emergency services or hospitalization of cancer patients in palliative home care?". Descriptors were neoplasms; palliative care; hospitalization; emergency medical services; home care services. Eligibility criteria were full text; between 2012 and 2022; English, Portuguese or Spanish language; adulthood. Results: 16 articles were selected. The most common causes of emergency room visits/hospitalization were pain, shortness of breath, infection, digestive symptoms, delirium, and poor general condition/fatigue. Conclusion: this study identified gaps in which palliative home care can be improved.


Objetivo: identificar los factores asociados a la visita a urgencias u hospitalización de pacientes oncológicos en cuidados paliativos domiciliarios. Método: revisión integrativa en PubMed, LILACS, Web of Science y Embase. La pregunta fue "¿qué factores se asocian con la visita a los servicios de emergencia o la hospitalización de pacientes oncológicos en cuidados paliativos domiciliarios?". Descriptores fueron neoplasias; Cuidados paliativos; hospitalización; servicios médicos de emergencia; servicios de atención domiciliaria. Los criterios de elegibilidad fueron texto completo; entre 2012 y 2022; idioma inglés, portugués o español; edad adulta. Resultados:se seleccionaron 16 artículos. Las causas más comunes de visitas a la sala de emergencias/hospitalización fueron dolor, dificultad para respirar, infección, síntomas digestivos, delirio y mal estado general/fatiga. Conclusión: este estudio identificó brechas en las que se pueden mejorar los cuidados paliativos domiciliários.


Subject(s)
Humans , Male , Female , Palliative Care , Home Care Services, Hospital-Based , Emergency Service, Hospital , Neoplasms/complications , Signs and Symptoms , Emergencies , Cancer Pain/complications , Hospitalization
18.
Demetra (Rio J.) ; 18: 67398, 2023. ^etab, ^eilus
Article in English, Portuguese | LILACS | ID: biblio-1442892

ABSTRACT

ntrodução: A desnutrição é uma das condições frequentemente observadas em pacientes sob cuidados paliativos, afetando a via de alimentação e impactando na diminuição da ingestão alimentar. O atendimento nutricional permite a identificação das alterações nutricionais, direcionando para terapia nutricional adequada. Objetivo: Analisar a terapia nutricional domiciliar e identificar o estado nutricional em pacientes sob cuidados paliativos no domicílio. Método: Estudo prospectivo, observacional com pacientes do Programa Melhor em Casa, em Guarapuava-PR. Foram avaliados por meio de anamnese, que compreendia diagnóstico clínico, exame físico, caracterização e intercorrências da dieta, SARC-F e avaliação antropométrica. Resultados: Participaram do estudo 24 pacientes, com média de idade 70,2+15,0 anos. Os principais diagnóstico clínicos foram: 45,83% câncer e 45,83% doença neurológica. O baixo peso e a classificação sugestiva de sarcopenia predominaram nos avaliados, sendo 54,17% e 87,5%, respectivamente. A via de acesso para alimentação prevalente foi a oral (45,8%), seguida de 41,7% para sonda nasoenteral; a fórmula mais utiliza foi a hiperproteica. A maioria apresentou sinal da asa quebrada (70,8%), perda da bola de Bichat (66,7%) e perda de massa nos membros superiores e inferiores. O diagnóstico nutricional padronizado mais frequente foi NC-3.2 (perda de peso não intencional), seguido de 41,7% com NI-1.2 (ingestão de energia subótima). Conclusão: Observou-se que a maioria dos pacientes eram idosos, acamados, com doença neurológica e câncer. Em relação ao estado nutricional, a maioria apresentou baixo peso e sinais de desnutrição. O atendimento nutricional com pacientes em cuidados paliativos se faz necessário, pois são pacientes com risco nutricional.


Introduction: Malnutrition is one of the most common conditions seen in palliative care patients, which can affect the feeding route and decrease food intake. Nutritional counseling allows the detection of dietary changes, and referral to appropriate nutritional therapy. Aim: The purpose of this study was to analyze home nutritional therapy, and identify nutrient-related diagnoses in home palliative care patients. Materials and methods: It's a prospective, observational study involving patients assisted by the "Better at Home Program", in Guarapuava - PR. Anamnesis was carried out to assess the patients, which included clinical diagnosis, physical examination, diet characterization and complications, SARC-F, and anthropometric assessment. Results: The study included 24 patients, with an average age of 70,2+15,0. The most frequent clinical diagnoses were cancer (45.83 percent) and neurological disease (45.83 percent). Low weight and a classification indicative of sarcopenia predominated among the patients, accounting for 54.17% and 87.55%, respectively. The most common feeding route was oral (45.8%), followed by nasoenteral feeding l (41.7%). The most commonly used formula was the hyperproteic. The majority of patients had sunken temples (70.8%), loss of Bichat's fat pad (66.7%), and loss of muscle mass in the upper and lower limbs. The most frequent standardized nutrition diagnosis was NC-3.2 (unintentional weight loss), followed by 41.7% NI-1.2 (suboptimal energy intake). Conclusion: Most patients were elderly, bedridden, and had neurologic disease or cancer. Regarding the nutritional status, the majority were underweight and exhibited signs of malnutrition. Palliative care patients require nutritional therapy since they are at risk of malnutrition


Subject(s)
Humans , Male , Female , Palliative Care , Nutrition Assessment , Nutritional Status , Nutrition Therapy , Home Nursing , Brazil , Malnutrition
19.
Dement. neuropsychol ; 17: e20220052, 2023. tab, graf
Article in English | LILACS-Express | LILACS | ID: biblio-1520812

ABSTRACT

Abstract Objetive: With the global population aging, there is a growing need for home-based care to meet the health needs of the elderly. However, the quality of care provided to the aged population is now arguably a significant challenge for most healthcare systems worldwide. Methods: The present review included 13 original studies on home care and its effects on dementia patients, describing how patient care and adequate treatment can be collaborative for their improvement, for case management, and optimizing pain control and specificities. Results: Among the findings, it was evidenced that the environment impacts the form of care, once being at home can improve communication and global monitoring of dementia patients. Conclusion: In addition to the results analyzed in this review, there is a need for future, well-designed studies on the different aspects of home care, highlighting the importance of evaluating the type of care for each patient in the quest to optimize the care.


RESUMO Objetivo: Com o envelhecimento da população mundial, há uma necessidade crescente de cuidados domiciliares para atender às necessidades de saúde dos idosos. No entanto, a qualidade dos cuidados prestados à população idosa é hoje indiscutivelmente um grande desafio para a maioria dos sistemas de saúde em todo o mundo. Métodos: A presente revisão incluiu 13 estudos originais sobre cuidados domiciliares e seus efeitos em pacientes com demência, descrevendo como o cuidado e o tratamento adequado do paciente podem ser colaborativos para sua melhora, para o gerenciamento de casos e a otimização do controle de sua dor e especificidades. Resultados: Entre os achados, evidenciou-se que o ambiente impacta a forma de atendimento, pois estar em casa pode melhorar a comunicação e o acompanhamento global dos pacientes em quadro demencial. Conclusão: Além dos resultados analisados nesta revisão, há a necessidade de futuros estudos bem elaborados sobre os diferentes aspectos da atenção domiciliar, destacando a importância de avaliar o tipo de cuidado de cada paciente na busca de otimizar o cuidado.

20.
Texto & contexto enferm ; 32: e20230010, 2023. tab
Article in English | LILACS-Express | LILACS, BDENF | ID: biblio-1515608

ABSTRACT

ABSTRACT Objective: to construct and validate the content of two multidisciplinary scripts for the care of patients with chronic diseases using enteral nutrition therapy, based on skills training, using clinical simulation, in the dehospitalization process. Method: this is a methodological study carried out at a federal public hospital in the Brazilian Midwest, between January and September 2022, in two phases: script construction and validity with 19 and 11 expert judges, respectively. Analysis occurred through the Content Validity Coefficient, the Content Validity Index and the Agreement Index. Results: two scripts were constructed and validated for caregivers' skills training and qualification to care for patients using home enteral nutrition therapy in the process of dehospitalization by nasogastric tube and/or by gastrostomy. For construction, the study had the active participation of six experts, from a multidisciplinary perspective. For script validity, the following values of Content Validity Coefficient, Content Validity Index and Agreement Index were reached, respectively: 0.998, 1.000, and 100%. Most experts' suggestionswere met. Conclusion: the scripts were considered valid in their content. They can be used by health professionals to carry out educational activities in the hospital environment regarding caregivers' preparation the management of home enteral nutrition therapy, when leaving the hospital.


RESUMEN Objetivo: construir y validar el contenido de dos guiones multidisciplinarios para el cuidado de pacientes con condiciones crónicas en terapia de nutrición enteral, basados ​​en el entrenamiento de habilidades, utilizando simulación clínica en el proceso de deshospitalización. Método: estudio metodológico realizado en un hospital público federal del Medio Oeste brasileño, entre enero y septiembre de 2022, en dos fases: construcción y validación de los guiones con 19 y 11 jueces expertos, respectivamente. El análisis se realizó utilizando el Coeficiente de Validez de Contenido, el Índice de Validez de Contenido y el Índice de Concordancia. Resultados: se construyeron y validaron dos guiones para la formación de habilidades y cualificación de cuidadores para el cuidado de pacientes que utilizan terapia de nutrición enteral domiciliaria en proceso de deshospitalización por sonda nasogástrica y/o por gastrostomía. Para la construcción, el estudio contó con la participación activa de seis especialistas, desde una perspectiva multidisciplinaria. Para la validación de los guiones se alcanzaron los siguientes valores de Coeficiente de Validez de Contenido, Índice de Validez de Contenido e Índice de Concordancia, respectivamente: 0.998, 1.000 y 100%. La mayoría de las sugerencias realizadas por los expertos se cumplieron. Conclusión: los guiones fueron considerados válidos en su contenido. Pueden ser utilizados por profesionales de la salud para realizar actividades educativas en el ambiente hospitalario, en cuanto a la preparación de los cuidadores para el manejo de la terapia de nutrición enteral en el domicilio, al egreso del hospital.


RESUMO Objetivo: construir e validar o conteúdo de dois roteiros multiprofissionais para cuidados de pacientes com condições crônicas em uso de terapia de nutrição enteral, baseados em treinamento de habilidades, com utilização de simulação clínica, no processo de desospitalização. Método: estudo metodológico realizado em um hospital público federal do Centro-Oeste brasileiro, entre janeiro e setembro de 2022, em duas fases: construção e validação dos roteiros junto a 19 e 11 juízes especialistas, respectivamente. A análise ocorreu por meio do Coeficiente de Validade de Conteúdo, do Índice de Validade de Conteúdo e do Índice de Concordância. Resultados: foram construídos e validados dois roteiros para treinamento de habilidades e capacitação de cuidadores para os cuidados com pacientes em uso de Terapia de Nutrição Enteral Domiciliar, no processo de desospitalização por sonda nasoenteral e/ou por gastrostomia. Para construção, o estudo contou com a participação ativa de seis especialistas, na perspectiva multiprofissional. Para a validação dos roteiros, foram alcançados os seguintes valores de Coeficiente de Validade de Conteúdo, Índice de Validade de Conteúdo e Índice de Concordância, respectivamente: 0,998, 1,000, e 100%. Foi atendido a maior parte das sugestões realizadas pelos especialistas. Conclusão: os roteiros foram considerados válidos em seu conteúdo. Poderão ser utilizados por profissionais de saúde para a condução de atividades educativas no âmbito hospitalar, quanto ao preparo de cuidadores para o manejo da Terapia de Nutrição Enteral no domicílio, quando da desospitalização.

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